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A Day in the life....  

Entries in K3 (12)

Tuesday
23Feb2010

Progress

K3 continues to improve.

Yesterday as I was driving her to school, we talked about road crossing lessons. K3 isn't confident crossing roads right now (little wonder) and I told her I would give her some coaching.

Me: So how about we practice crossing the road?

K3: When?

Me: Tonight? When I get home from work?

K3: OK.... [long pause]

K3: (horrified voice)Wait... what about dinner?

Now that she can eat again, K3 is very in tune with meal time!

It will be awhile before she can bite into anything like pizza, but pasta and grilled vegetables are very good to her right now. We tried orzo the other night and that was awesome!

The first road crossing lesson went well. Tonight we will have K2 drive up and down the street with her car and see if K3 makes good crossing decisions! K2 is under strict instructions not to mow her down!

To reward me for the giving her lessons... K3 made these:

 

I love that kid!

AG out!

PS ~ She can bite a cookie...!

Friday
19Feb2010

Triple Shot Friday

An experiment in no flash shooting...

...captures a tender moment...

... between a girl and her four footed buddy.

The sweetness of their relationship always gives me a warm fuzzy...

AG out!

Monday
08Feb2010

Retard

Retard

What a dreadful, ugly, soul stealing, hope shattering, gut wrenching word. If this word makes you uncomfortable, I recommend you read no further.

Retard was in the news last week and after much thought, I decided I wanted to respond in my own forum:

The news coverage started when the press reported that back in August, in a closed white house meeting, Rahm Emmanuel called some members of congress “effing retards”.

Predictably, there was much negative coverage, but it didn’t seem like much of an outcry until Sarah Palin called on Obama to fire Emmanuel stating “his comments were offensive to children with developmental disabilities.”

But it does not end there. A Palin aide criticized an aide of Texas Gov. Rick Perry for using the word “retarded” in a conference call regarding political logistics during his campaign.

Finally, in an effort to call attention to how ultra sensitive we’ve become, Rush Limbaugh stood forth with his assertions that “Our politically correct society is acting like some giant insult’s taken place by calling a bunch of people who are retards, retards”.

Asked for a comment, Sarah Palin’s aide responded by saying “Governor Palin believes crude and demeaning name calling at the expense of others is disrespectful.”

I’m stopping there because this piece isn’t purposed for political observations. It’s personal.

When K3 was labeled retarded early in her kindergarten career, I took it personally. Having the label Retarded applied to your child meant the end of possibilities. The hope and vision I had for my child came to a screeching halt. Moving from “delayed” to retarded implied not just a different life, but a partial life, a life with limited opportunities… Further, it gave me many sleepless nights thinking of how she would be perceived by her peers… devalued, mocked, ignored….

I became hyper sensitive and hyper vigilant about short bus jokes, retard references and name calling. I coached… I educated…I got in blazing arguments with family members… I might have continued down that path, but I came to realize that it wasn’t a healthy focus. Changing the words people spoke was a far cry from changing their thoughts of K3 or anyone else with a disability.

And I needed to concentrate on my daughter and her needs. Policing everyone in my vicinity wasn’t a productive use of my energy. And as a strategy, it lacked realism. The odds that I could change the world to conform to my daughter’s needs were nil. I was far more likely to succeed in keeping my daughter’s corner of the world K3-friendly. And long term, I needed to focus on getting K3 “world ready”.

And that I suppose may be the difference between someone still coming to terms with a child with a disability… or it may just be me. Either way, I’m happy to be at peace with K3’s differences.

In closing, my opinion is that people like Rush Limbaugh harbor a special kind of evil in his heart, one that goes beyond ignorance or naiveté or even showmanship. If our purpose on this planet is to help each other and accept our differences and live in harmony, I think Mr. Limbaugh shows his limitations through both his thoughts and his words.

My little K3 is worlds ahead of him. 

AG out!

Thursday
04Feb2010

This and That Thursday...

  • We've had no snow this winter. After last year's excess I'm kind of okay with that.
  • I miss snow ( a little)
  • K3's surgeon is really happy with the bone graft
  • Wii Fit Plus is evil. The yoga and the super hula hoop are kicking my butt!
  • I love the Wii Fit Segway race agains the moles!
  • I'm working from home today! Yippee!
  • I know someone who lives in Maryland!
  • I think I'll make K3 scrambed eggs for dinner.
  • The surgeon said nothing but soft foods for K3 the next 3 weeks. How much cream of wheat can one person eat?
  • I still have to buy tires for my car
  • I should do laundry and muck out the living room today. There's towels and medical supplies everywhere
  • Maybe I should finish putting holiday nutcrackers away too?
  • I feel great!

What's on your list today?

AG out!

 

Thursday
07Jan2010

Looking ahead

This is the view just outside of K3's surgeon's office. Practically under the monorail on 5th Ave, looking north toward the Space Needle. We went downtown today for her check up after surgery.

As the nurse was looking at K3's gums and asking her if she had been brushing the part of the gum where the implant is, K3 said with a perfectly straight face "I'm pretty much just focused on brushing the teeth I have left."

I thought I was going to die from laughing so hard. The nurse was chuckling and we had one of those 'eye contact' things over K3's head that translated into 'kids say the darndest things!'

Things are on track for the next round of surgery at this end of this month. This will be the extraction of the wisdom teeth and the next (and hopefully final) bone graft on her lower jaw bone. They asked did I want her to have anethesia for that appt... um YEAH! Knock her butt out! And refill her liquid Vicodin because I'm going to keep her pain free for the week following. I can't even imagine how porked over her mouth is going to be...

Yours in dental fortitude...

AG

 

Tuesday
05Jan2010

Buddies

These two have been bestest buddies for a few years now. Maddie is such a needy little clown. She is my absolute favorite dog and has made such a difference in K3's life. So much so that K3 wanted her in some of her senior pictures...

Because of Maddie, K3 was able for the first time in her life to take on the role of protector (instead of protected). In the shot above, she is 'saving' Maddie from my dad!

Maddie has returned the favor many times, not the least by being K3's "Head Comforter" following her surgeries and convalescence.

Last night I came home from work to find K3 improving nicely from last weeks implants... And Maddie gravely ill in TOG's office. We rushed her to the vet and K3 and I waited and worried until we got the diagnosis that it was a severe intestinal infection and not something terminal as we feared, given the state of the carpets upstairs.

As much as I love that little dog, I think she's even more important to K3, who spent the evening comforting and cuddling her buddy. It's such a joy to see them together...

It's just a bonus that she keeps us safe from squirrels too!

Hugs,

AG

Saturday
02Jan2010

Starting off

I took this shot right before Christmas and fell in love with it as soon as I uploaded it. When I showed it to K2 she said it looked like someone dragged their fingers through the clouds toward the sunrise. I thought it might be the perfect shot to start off the year.

Somewhere in all the hubbub around the holidays, I missed the second anniversary of my blog. I think it was the day of k3's accident. Happy anniversary to Is My Cape Fluttering! That's about all the energy I can muster right now.

K3 is still sleeping. I woke her up at 6am for more pain meds and a jar of baby food. We'll see how she feels when I get her up for breakfast.

I think TOG and I are doing our anniversary dinner tonight. I guess that means I ought to get out of my yoga pants and thermal shirt and glam up.

Right after I give K3 a bath and an ice pack and take the tree down...

I'm in a funk... maybe it's time for online shoe shopping...

AG out!

Wednesday
30Dec2009

Past and Present

Today is a dual celebration... 29 years ago today, I married this man. Which brings to mind a few questions:

  • How did I get so old?
  • How have we made this work?
  • Is it really 2009...?
  • What did I do to deserve such a charmed life?

I did a post a few months ago about the night we met... but honestly, it seems like yesterday, not 29 years ago. While we've gone through many changes together.... parenthood, moving, career changes, having a child with a disability, grandparenting... there are a few things that still hold true. He's still my best friend, a heck of a fisherman and I've never met a more stubborn person in my life!

Happy Anniversary Ye Olde Goat!

Twenty nine years later (today), K3 is going in for her second surgery on her broken jaw. I believe it is implants this morning... In fact, that is likely where we are while you are reading this. I set it to post while we are downtown.

As we are no longer rookies at this process, we have stocked up on baby food, pudding and ice packs and the Brute Squad is ready to do some serious cuddling. Stay tuned for updates... likely on Facebook.

Have a fabulous day!

AG out!

Wednesday
23Dec2009

Wordless Wednesday Sing-along!

"All I want for Christmas is my two front teeth..."

A surprise Christmas present from the reconstructive dentist... Thank you, Dr. C! Thank you so much!

As that's about as wordless as I can be under the circumstances...

AG out!

Thursday
03Dec2009

Cold Weather Nostalgia

The cold snap that we've had the last day or two has forced me to look at warm weather pictures... specifically our photos from Seaworld. I was amazed that I had processed so few of them.... and then I remembered how sick I was when I came back. Thus... it was a blast looking through them! Especially the ones of K3! This was our gift to her for graduating high school... and she had wanted to go to Seaworld ever since she was a little wee and saw Free Willy. I don't think she stopped smiling the entire time we were there (except for the zoo which had no whales!).

See for yourself!

In the tank with the Beluga Whales...

Boarding the Midway....

On the way to a Shamu show!

Having breakfast in Old Town...

I love that kid.

How's the weather where you are? Tell me I'm not the only one freezing my goodies off....

AG out!