A Day in the life....  

Entries in K3 (22)

Wednesday
Sep012010

Letting go (or not)

One of my favorite shots (above) of a girl and my her dog. While I've been doing a lot photography for work, I haven't had "fun" with my camera in a while. Shots like this remind me that I need to quit leaving it in my car and bring it in at night.

I haven't been putting much into the blog recently. While there's a lot going on right now, I'm trying to be mindful of K3's privacy and just gloss over the surface.

Testing with the autism clinic has begun, and we sat through a 2 hour intake session last week where we discussed her disability and it's impact in detail. Over all, I like the psychologist. She doesn't quite "get" K3 yet (who would after only two hours?) but she was sensitive throughout the session and went out of her way to make K3 feel really comfortable with the process.

In the meantime, K3 and I continue to try to find the balance in other areas of her life. There has been talk of doing things she has not done before and I find myself really wrestling with decisions. On the one hand, I want her to do the things she's capable of doing, and on the other...  I want to keep her safe. And yes, I'm still examining the decisions around letting her ride the bus last year and the accident. I know I'm not to blame directly, and I'm not sure I could have prevented it ultimately (it might just have occured in a different time or place) but my gut told me "no" and yet I wanted her to grow, to have the opportunity. So I said yes even though I had significant misgivings. Sigh...

That doesn't mean I can swing the pendulum the other way and allow my "gut" to be my guide. My gut would love to keep her safely in the house where supposedly, all would be well!

It does mean that I'm wrestling with basic decisions that concern K3 much more. And it's not just the accident... there was an incident a few weeks ago where a young lady (similar to K3) was killed by a neighbor boy that she knew. It's hard not to project that onto K3. It's harder still to talk to K3 about safety awareness when it includes people she is used to seeing in the neighborhood.

I'm happy to report, that through it all, K3 remains happy, funny and sweet. One of the biggest results of the accident is that she and I have grown much closer. And while I'm aware that she could end up depending on me perhaps a little too much, I think for now that closeness helps us navigate the next steps for both of us.

I love that kid.

AG out

Tuesday
Jul132010

Quantum Leap

 

Today my little K3 turns 20. I no longer have a child in their teens!

It has been a dramatic year for K3... she's had some exciting experiences!

Beginning with her high school graduation last year

Getting her first nephew! (and realizing he was all that!)

Living the dream and going to Seaworld to see Shamu!

 

Then the accident and all the subsequent surgeries....

Sitting in a pub with Mom and Dad...!

She's grown up a lot this year... (and yet somehow retained all of her sweetness and innocence)

I know she's ready to face the challenges in front her. She's one heck of a groovy kid.

Happy Birthday my little boo boo girl! Mom loves you so much!

(the rest of the family does too, but I'm not authorized to speak on their behalf!)

Hugs and Kisses!

Mom <3

Friday
May282010

The View

The view looking south from the tip of Vancouver Island is nothing short of amazing. I've shot it in all sorts of weather; summer, spring and winter and I never tire of it. The Olympic Mountains of Washington State make a fabulous backdrop to the Strait of Juan de Fuca.

I think the cloud above looks like a tornado!

The weather was extraordinary and TOG and K3 loved exploring the rocks and tidal pools.

They look so tiny out there!

I think K3 was looking for critters in the rocks.

Barnacles...Not as exciting as seeing fiddler crabs, but we'll take what we can get!

TOG was really hoping to see seals. Although we saw some on the ferry ride, they didn't stop by during this visit.

The weather on this holiday weekend is blah. In Seattle speak, "we'll be lucky if it doesn't rain"... and rain... and rain...

Since TOG is working, I'll be looking at these shots over the weekend and remembering what a lovely time we had. It just doesn't get any better than this!

What are your plans for the weekend?

AG out!

Wednesday
May262010

Wide Open Wednesday

Here's a blurry pic of K3 I snapped going out the door to dinner in Canada. She did a little shopping and was very happy with this outfit. I even loaned her my sandals so she could feel extra groovy. She promptly fell in love with them and inquired about whether I really liked these as much as I thought I did. Twerp.

As an update:

We did not make the deadline for the insurance in terms of getting K3 in for tooth rebuilding. We are now in appeals mode.

The guardianship paperwork is nearly complete. But without a firm diagnosis of her disability, the outcome is iffy.

Thus a referral has been made (Thank you Dr. M for coming through yet again) to a neurologist who will examine K3 and tell us who-knows-what.

I made K3 sit with me and help me fill out the questionnaire the neurologist sent. I don't know which is more depressing, the dang questionnaire or the flippin' guardianship application.

We are seeing more frequent incidents of her disability sneaking into our daily lives... little blank spots that come up when confronted with new challenges... situational anger over changes in her environment, or even discussion of any potential changes. Any rosy picture I had of the guardianship is evolving daily.

I wish I could bury my head in the sand and pretend that we didn't have to deal with this. But instead, I'll keep pretending to be courageous and resolute.

I'm in discussion with one of the other managers at work who deals with the county we live in. It seems like it would be to our advantage to allow K3 to be evaluated by our local government disability counselors following the resolution of guardianship, something I swore I would never do after the birth to three debacle. But, there may be some short term funding available for at least a year. Which would be awesome as I'm totally disgusted with the school districts transition program and would like the funding to access an outside vendor, specifically the agency I work for.

So there you have it... a series of ugly conversations headed our way... doctors, judges, court advocates, disability counselors...

I'm totally and completely gloomed out just thinking about it, but hopeful that it will all benefit K3 in the long run.

She's totally worth it.

AG out!

PS~ In terms of K3 in the pub, we're not encouraging her imbibing alcoholic beverages. She had a sip of cider and that was about it. She prefers soft drinks and is really only there for the pub grub!

 

Wednesday
May052010

I'll take torque wrenches for a thousand, Alex...

Maddie worked her little Chihuahua butt off and got K3 ready for her check up at Dr. J's, her reconstructive surgeon. The nurses are very nice, but sometime I think they're a little jaded about how uncomfortable these bone graft/ implant procedures are...

"Hi K3! You look great! Hopefully it didn't hurt too bad this time..."

"Well, yeah... it hurt a lot. Because it wasn't just the implant, Mom says I had a bone graft too."

"Oh, yes...so you did" flipping through the file, "and apparently we took the screws out of your jaw from the last bone graft too. No wonder it hurt!"

Yeah... no wonder it hurt.

With the six month anniversary of the accident coming up in two weeks, we're trying to complete as much treatment as possible before the insurance closes out our claim. So next Friday, Dr. J says we need to come in to test the implants.

On the more mature implant on top, they plan to do a torque test.

 

[photo borrowed from these guys]

I know, I cringed too. But apparently that's a standard test for implants. I glanced over at K3 and she didn't understand... I must have had a horrified look on my face (or a torque wrench floating above my head) because they immediately offered to refill her pain meds. On the newest implant, they thankfully just do an ultrasound to make sure it's embedded correctly in the jaw.

Fortunately, Maddie is ready to work double shifts next weekend... talk about dedication!

 Once the implants are tested, the dentist can make new impressions and start building her new "store bought" teeth!

I can't believe it's been almost 6 months since she got hit by the truck...

What a journey...

In the meantime, K3 and I have been discussing the options around the guardianship application. There are variables on how the parties involved want to handle life issues like medical decisions, voting rights and marriage rights. Even issues around her "estate" and how her money will be handled. After a while, we put the paperwork to one side and gave K3 a facial...

Because you want to look good for your torque test...

Sorry, I just can't move past that!

Off to feed K3 breakfast before I go to work. Have a great torque-wrench-free day!

AG out!


Wednesday
May052010

Tap, tap...yawn

Good morning...

I'm tired. Feeding two people and bathing two people and medicating two people... well, like I said before, only one person gets well taken care of, and it's not me. But I'm on schedule with all of K3's meds and cleaning. Myself, not so much.

Today is her follow up appt with the surgeon. Hopefully, she's well on the mend.

In the meantime, I'm putting in weird hours at my job, not visiting other people's blogs and sleeping sporadically.

And watching Deadliest Catch! 'Cause that's a must!

Picture taken at CatchCon 2010.

Yawn...

AG out!

Tuesday
May042010

Ack!

Trying to get ready for work in the morning AND get K3 medicated AND clean up the kitchen means very little time for blogging! So this will be quick!

The shot above was taken at CatchCon while I was waiting in line for boat tours. It's one of our Washington State ferries coming in to port.

K3 is making process. We thought it would be just an implant, so having an implant and a bone graft was a little more painful than we thought it would be. She is doing well, but is still on the cream of wheat. We aren't even up to milkshakes yet. For entertainment, we've been watching a lot of Monty Python's Flying Circus and trying not to laugh!

The brute squad has been on the job, I just hadn't mentioned them. I stayed up late processing photos last night....

That's K3 behind the ice pack!

Cassie making sure K3's hand is as clean as it can get!

An exhausted Maddie, taking a break in my lap while Cassie and Fiona oversee K3's healing process!

Okay... off to dispense cream of wheat and vicodin. I'm doing a half day this morning because I'm a dope and didn't take enough time off.

Hope your day is all that!

AG out!

Saturday
May012010

Crabs, Bones and CatchCon 

K3 is doing better today. She vomited blood again last night... it seems to be inevitable after each surgery when it drains down her throat. But she slept well afterwards and seems to be a little livelier this morning.

The surgeon was not able to put the newest implant where he wanted it and had to put it one tooth socket over. When he pulled back her gums, the bone in the spot he wanted lacked integrity and so he did another graft next to the implant with donor tissue and membrane. We will see what the dentist says about constructing the teeth on top of the implant or if we'll have to consider future implants where the bone graft is now. I think we're all ready to be done with this process... but particularly K3.

Catch Con is later today and I'm kind of excited and kind of dreading leaving K3 and kind of hoping it's as cool as can be. I was emailing with my Aunt (Hi AC!) yesterday and she reminded me that my cousin, AC's oldest son, had survived the sinking of the crab boat he was working on. That would have been back in about 1984...? Unfortunately, he did not survive a motorcycle accident a year later which broke everyone's heart. He was one of those super charismatic people that had that little extra gleam in his eye and a zest for life. He was very vivid and I remember him fondly...

Anyway... I'll be thinking about him at CatchCon today. And K3... And taking lots of pictures! (and loading up on extra asthma meds just in case!)

Have a great weekend!

AG out!

Friday
Apr302010

Triple Shot Friday 

On surgery eve, it's completely appropriate to eat pizza (not pictured) and chocolate cookies... especially since you'll be living on cream of wheat, baby food, fruit smoothies and chocolate milk for the next week.

Although I've hesitated and hoped things would work out, it's time to file the paperwork for legal guardianship. As much as I wish it were otherwise, I'm clear that we can't rely on others to make decisions that benefit K3. As her best advocate, I'm ready to step up and help her get the most out of her opportunities.

I really appreciated my friend Judy's comment yesterday on my tongue-in-cheek decision matrix. Judy is getting ready to undergo more treatment for her breast cancer this summer and will be wearing donated hair. She doesn't have the option of keeping her hair, much less dithering over whether to cut it or not.

So I'm committing... I'll finish growing my hair out and donate it again. This will be the third time in the last 9 years. It's the least I can do on behalf of Judy and the other women that need to borrow it for their journey. Here's a current pic of the length (as well as Bad Girl the cat and Maddie... up at the top of the stairs). I figure the hair might be ready to go by end of summer, fall for sure. I feel really good about the decision.

I'm setting this to post while we're downtown doing K3's final surgery. Sending y'all kind thoughts and warm hugs! Thanks as always for enriching my life!

AG out!

Monday
Apr192010

The Youngest

K3 let me do a photo shoot with her this weekend. I really enjoyed getting my camera out and working with her. She can be quite photogenic!

We have her final surgery scheduled for the end of April. This will include her final implant as well as adjustments to her gums to get them ready for the teeth they'll be bolting in. We're such pros at this now that we're not even worried. The last couple of appointments will be the construction of the teeth that will be placed in her mouth. It will be down to the wire getting everything done before the deadline the insurance company gave us.

In the meantime, she continues to go to her school program. Our crossing the street lessons have made her more confident about riding the bus and getting to and from her school. She's also started working a short internship in the school kitchen which is not exciting for her at all, mostly clean up  work....but she says she enjoys it.

A cute story: While we were downtown at her doctor's appt last week, we'd gotten in the elevator at the parking garage when I saw two business men trying to make the elevator. I held the doors for them and they got on, still talking with each other. K3 had been standing on the other side of the elevator from me and I had just pressed the lobby button and stood back when she came barreling across the car, brushing the two men aside and buried her face in my neck. They were completely taken aback and one of them said something like "what the heck?"... both of them were staring at us. I put my arm around her and said something like "the umbilical cord only stretches so far" but I could tell they were thinking there was something odd about K3.

I actually felt pretty serene as we got off the elevator. I whispered to her as we walked outside...

"Why'd you trample the guys in the elevator to get to me?"

She gazed up at me with her pretty blue eyes and smiled, "I just felt a little clingy."

That's my girl... unique, sweet, one-of-a-kind~

Mothering someone with special needs is just like that.

Unique...

Sweet...

One of a kind...

You just have to let it roll over you...

AG out.