« The Alley | Main | Girl in a Pub »
Wednesday
May262010

Wide Open Wednesday

Here's a blurry pic of K3 I snapped going out the door to dinner in Canada. She did a little shopping and was very happy with this outfit. I even loaned her my sandals so she could feel extra groovy. She promptly fell in love with them and inquired about whether I really liked these as much as I thought I did. Twerp.

As an update:

We did not make the deadline for the insurance in terms of getting K3 in for tooth rebuilding. We are now in appeals mode.

The guardianship paperwork is nearly complete. But without a firm diagnosis of her disability, the outcome is iffy.

Thus a referral has been made (Thank you Dr. M for coming through yet again) to a neurologist who will examine K3 and tell us who-knows-what.

I made K3 sit with me and help me fill out the questionnaire the neurologist sent. I don't know which is more depressing, the dang questionnaire or the flippin' guardianship application.

We are seeing more frequent incidents of her disability sneaking into our daily lives... little blank spots that come up when confronted with new challenges... situational anger over changes in her environment, or even discussion of any potential changes. Any rosy picture I had of the guardianship is evolving daily.

I wish I could bury my head in the sand and pretend that we didn't have to deal with this. But instead, I'll keep pretending to be courageous and resolute.

I'm in discussion with one of the other managers at work who deals with the county we live in. It seems like it would be to our advantage to allow K3 to be evaluated by our local government disability counselors following the resolution of guardianship, something I swore I would never do after the birth to three debacle. But, there may be some short term funding available for at least a year. Which would be awesome as I'm totally disgusted with the school districts transition program and would like the funding to access an outside vendor, specifically the agency I work for.

So there you have it... a series of ugly conversations headed our way... doctors, judges, court advocates, disability counselors...

I'm totally and completely gloomed out just thinking about it, but hopeful that it will all benefit K3 in the long run.

She's totally worth it.

AG out!

PS~ In terms of K3 in the pub, we're not encouraging her imbibing alcoholic beverages. She had a sip of cider and that was about it. She prefers soft drinks and is really only there for the pub grub!

 

PrintView Printer Friendly Version

EmailEmail Article to Friend

Reader Comments (4)

She looks great .. so did she talk you into giving her your sandals? You are one strong woman, I know I've said it before but it bears repeating ... xo

May 26, 2010 | Unregistered CommenterDaryl

That is a beautiful picture of K3! I sometimes can't believe you handle all the things you have to, so well.

I'm in the midst of trying to deal with a 27 yr. old son who has decided to start doing drugs again. After being totally clean for 3 years. I am so heartbroken & deflated that I often wonder how I can go through this again, but I know that I have to. As parents, we don't really have a choice, do we?

May 26, 2010 | Unregistered CommenterLiz C.

She is lookin' good! And I feel for you. But I have a feeling that the more conversations you have, the more productive they may be...fill the funnel, and you never know what you'll get through it. Hugs to you all.

May 26, 2010 | Unregistered CommenterMental P Mama

I am so sorry to hear you're going through all this bs. So sorry. I know what that disability paperwork is like, at least the endless forms I had to fill out for my husband.
You are in my thoughts. Sending you good ones from Maryland.

May 27, 2010 | Unregistered CommenterKate

PostPost a New Comment

Enter your information below to add a new comment.

My response is on my own website »
Author Email (optional):
Author URL (optional):
Post:
 
Some HTML allowed: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <code> <em> <i> <strike> <strong>